Group B Strep – Aware.
Group B Strep – Content warning – medical language and near death experience.
Group B strep was knowing Mummies who had needlessly lost their babies.
The stories lead to worry.
Worry became research.
Research became awareness.
Awareness became knowledge.
30-50% of women carry group B strep at any given time.
Generally it’s harmless to the women who carry it.
But it can be fatal for the babies that they carry.
Knowledge had to become taking action.
Strep B was asking my midwife if I could be tested.
Just to be told that it’s very rare and it’s highly unlikely.
Strep B was taking matters into my own hands.
The GBSS website equipped me with most of what I needed to know.
I ordered my own testing kit through the list of GBSS approved ECM tests.
I waited.
The testing kit arrived and information pack arrived.
I waited until I was 35 weeks pregnant to do my test.
35 weeks came.
I did the swabs.
Sealed, Labelled.
I wrote a cheque for £37.
£37 to potentially save my babies life.
£37 well spent, regardless of the result.
It was all put in an envelope and posted.
I knew that the results would take up to two weeks.
So I waited.
Two weeks had passed but no results had arrived.
So I sent them an email.
They replied straight away and were very apologetic.
This email had an attachment.
I opened the attachment.
The seconds that it took to open and load felt like years.
*POSITIVE* *POSITIVE*
The word blared at me like red lights.
Is it my fault? What had I done?
I cried and I cried.
My excitement to meet our baby turned to fear.
It was midday, but I fell asleep in tears.
I didn’t want to say it out loud but I told my partner and I told my parents.
I felt guilt but I reminded myself that it wasn’t my fault.
Strep B isn’t sexually transmitted. It is naturally incubated.
There was no way I could have known.
Fear had to turn into action.
Action…
Action. This was raising awareness to my pregnant friends and acquaintances.
Action. This was passing on the results of the test onto my midwife.
Action. This was including my strep B positive diagnosis in my birthing plan.
The community midwife stuck a small “STREP B” sticker on my pregnancy notes.
This was to supposedly alert the team that were to help me through labour.
A sticker wasn’t certain enough, but my voice was.
I couldn’t count how many times I had to get medical professionals to clarify that they would take this seriously.
Did they have enough of the antibiotics on the ward?
Would I get access to them?
Would I get at least 2 rounds of antibiotics?
Will I get the antibiotics at least 2 hours before she is born?
Would my baby get ongoing checks after she was born to insure that complications had been completely avoided?
What if I couldn’t get to hospital quickly enough after my waters broke?
The 31st of January came and I became unwell.
I went to maternity day care where they diagnosed me with preeclampsia.
I was to be induced.
Starting that night.
Relief!
I would be in hospital until she was born.
I could be sure that everything will be ready for her arrival.
Many of my conversations with midwives were about strep B.
Where did you get tested? I tested myself at home with testing kit.
How did you get tested? I tested myself after I paid for a test.
How did you know about strep B? I have family friends who were affected by it.
How much did you pay to get tested? £37.
A couple of days passed.
My waters broke.
Fear kicked in.
I was moved from an induction room to a labour room.
A drip was started to protect my baby from strep B.
But my black and blue hand wouldn’t take the drip.
I became very worried and begged them to swap to another cannulation site.
They did.
Finally, I got what I needed.
I was able to protect my baby.
One round.
Two round.
Over 5 hours.
She made her entrance.
It started to go wrong for me, because of a tear.
Yet- She was okay.
I didn’t know it yet, but my baby was safe.
My Mother made sure that she was getting her after birth group B strep checks.
Every 4 hours the checks were made.
She was fine.
My baby was going to be okay.
I came round.
Went from theatre, to recovery to being back on the labour ward.
She was having another lot of checks.
Temperature.
Stethoscope to the chest.
Movement.
Breathing.
Our baby was okay.
She was healthy.
But it all could have been so different.
I was feeling cold.
Then hot.
Then freezing.
My temperature was taken.
Then my pulse.
Blood was taken.
Blood was tested.
My tear had become infected by strep B.
I was diagnosed with sepsis.
I fought for my life for the second time in 24 hours.
Antibiotics were administered.
Strep B had given me sepsis.
It took over a week to recover – despite me being well equipped.
But if it was my baby who had become unwell it could have been so different.
I don’t want to think about it.
No, I can’t think about it.
I will never shut up about strep B until it is properly addressed.
Until every mummy to be, knows of the danger.
Of the risks.
I will not stop until strep B is no longer an issue.
It doesn’t need to be an issue.
All pregnant women need screening for strep B.
That is what strep B is to me.
Find more of our pregnancy related content here
Anonymous
I understand that having a baby is scary. I'm sorry your providers didn't take you seriously and I'm sorry you got sepsis. With that being said, the pediatrician on the maternity ward tried to have my baby removed from my care because I refused the steep b test. Knowledge is great but inciting the level of fear that your blog does hurts babies, it hurts mothers and it tears families apart. There were lots of places in your article that you chose to instill fear rather than give actual statics. Please stop.
Someonecallsmemummy
Hi there, Apologies for the very delayed response here! We're sorry you feel that this blogpost is fear-mongering – it certainly isn't. It's one of our mummy's subjective stories on how strep b affected her and her baby, and if we can't share that then there wouldn't be much point in the whole blogging thing anyway! Nevertheless your experience sounds awful and we hope everything resolved well and that you're enjoying your lovely baby and life as a mummy -Sarah
Unknown
I can't imagine any care provider not doing a Strep B test. It's a requirement with my midwife at 35-36 weeks. I am in the US so maybe that's the difference but it's a simple test that can prevent a lot of heartbreak.
Someonecallsmemummy
It’s routine in so many other countries! Luckily for Harriet it was spotted and treated!
Brooks
This is so horrible! My doctor tested me without me asking. I honestly didn't know this was an issue in other areas of the world! So sad!! I hope they change their way of thinking soon and make the strep test a requirement. Good for you for getting the test yourself!
Sarah Barber
It’s such a simple solution to prevent needless newborn fatalities. Women here are not even educated about strep B unless they know someone who has had it previously! This month is strep B awareness month at GBSS and they have produced new informative leaflets for expectant mothers in the UK but we need to raise more awareness! Thank you for commenting
Harriet's Labour - there's a time and a place to die - Mummykind
[…] Group B Strep test earlier in pregnancy was positive. I needed IV antibiotics to keep you safe from the dangerous […]
Breastfeeding Blues - Mummykind
[…] I was diagnosed with sepsis due to complications of being strep b positive. When I wasn’t fighting for my life I was trying to feed my baby. My milk never really came […]